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Tuesday, September 16, 2025
TopicHaemophilia

Topic: Haemophilia

Govt considers low-dose emicizumab for haemophilia, trial finds it more effective than existing treatment

‘Miracle drug’ can cost Rs 13 lakh for haemophilia A patient annually, but reduced dose found efficacious & cost-effective in small trial. Larger trial is under way.

A new RNA therapy could prevent spontaneous bleeding in haemophiliacs, ‘reduce treatment burden’

Studies in The Lancet & The Lancet Haematology show 1st of its kind preventive therapy by Sanofi, using monthly injection 'fitusiran', can reduce bleeding in haemophilia A or B patients.

New US-approved gene therapy for Haemophilia B world’s most expensive drug — $3.5 mn per dose

Hemgenix, manufactured by Australia's CSL Behring, is a one-time therapy, given through a single dose of IV infusion & was approved by US Food and Drug Administration this week.

‘Bloodbath childhood’ is what I got in India. Haemophilia needs Modi govt’s attention

In India, WHO-recommended 'standard care' is so expensive that many can't afford it. The other option is to simply wait till the bleeding stops.

On Camera

Indian cricket team and its half-hearted performative patriotism

India won the match against Pakistan. But when it came to upholding the spirit of the game, they dropped the ball.

At launch of NITI Aayog report, Sitharaman calls for regulation to run at par with AI adoption

FM adds that AI-assisted technologies should be adopted in all districts to bring development & highlights importance of collaborative ecosystems in tech innovation.

New Defence Procurement Manual out, first since 2009, with moves to cut red tape, ease pvt participation

The updated manual introduces reforms like guaranteed orders, lower financial penalties & simplified procurement for specialised equipment.

Gen Zs have taken down the Nepal regime. Here’s why this will never happen in India

To be truly functional and durable, even eternal, a state doesn’t just need a leader, a party or an ideology. It needs functional and robust institutions.