India has 8.4 to 19 crore rare disease patients, according to health ministry estimates. But current beneficiaries in most cases are kids or those who need relatively less expensive drugs.
The medical research body aims to encourage domestic companies to develop cost-effective treatments for rare conditions, such as spinal muscular atrophy, Gaucher disease, among others.
Surgery conducted at Fortis Escorts, Okhla. Removal of diseased portion of liver was a challenging task as organ was stuck around surrounding vital structures.
Finance ministry announces exemption from basic customs duty. Cost of some medicines used to treat rare diseases ranges from Rs 10 lakh to Rs 1 crore, says govt.
Their main demands were amendment of rules to ensure insurance firms can't deny reimbursement of medical expenses & funding of indigenous research to develop a treatment protocol for DMD.
Experts say the one-time payment for poor patients of rare diseases is a u-turn from the govt’s earlier promise of continued aid irrespective of income.
Ambedkar regarded both Gandhi and Jinnah as suffering from ‘colossal egotism’, who made Indian politics a matter of their ‘personal quarrel’ and brought it to a standstill.
Centre for Science and Environment in new report makes case for rationalising GST on waste material, saying most informal operators can’t afford high tax & it also hinders recycling.
21st edition of annual joint military exercise will be held from 1 to 16 September, aimed at sharing military tech, operational best practices & disaster relief coordination methods.
Standing up to America is usually not a personal risk for a leader in India. Any suggestions of foreign pressure unites India behind who they see as leading them in that fight.
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