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Wednesday, February 18, 2026
TopicRare diseases

Topic: Rare diseases

Budget cuts import costs of certain cancer & rare disease drugs. Why it offers little relief to patients

Cancer imposes catastrophic health expenditure in India, with medicines constituting over 60% of out-of-pocket expenditure. Research shows wide price variations, limited cost containment.

Kerala set to expand unique model of procuring expensive life-saving drugs for rare diseases

The state’s KARE programme to provide free high-cost treatment for certain rare diseases for children will now cover all patients under the age of 18.

36 drugs to treat cancer, rare diseases exempted from basic customs duty in Union Budget 2025

Lakhs of patients are likely to benefit from this move as some of these drugs were exorbitant to procure.

New hope for rare disease patients: Rs 900-cr govt project to get high-value drugs at lower rates in works

India has 8.4 to 19 crore rare disease patients, according to health ministry estimates. But current beneficiaries in most cases are kids or those who need relatively less expensive drugs.

ICMR calls for development of local drugs for rare diseases, offers assistance in clinical research

The medical research body aims to encourage domestic companies to develop cost-effective treatments for rare conditions, such as spinal muscular atrophy, Gaucher disease, among others.

Delhi doctors perform 8-hour auto liver transplant surgery on Kyrgyzstan woman, 2nd in India

Surgery conducted at Fortis Escorts, Okhla. Removal of diseased portion of liver was a challenging task as organ was stuck around surrounding vital structures.

Govt decision to remove tax on drugs & food to treat rare diseases could benefit 70-90 million Indians

Finance ministry announces exemption from basic customs duty. Cost of some medicines used to treat rare diseases ranges from Rs 10 lakh to Rs 1 crore, says govt.

‘Breaks me every day’: At Delhi rally, parents of kids with muscular dystrophy flag dire need of govt support

Their main demands were amendment of rules to ensure insurance firms can't deny reimbursement of medical expenses & funding of indigenous research to develop a treatment protocol for DMD.

Govt sets up ‘rare disease’ crowdfunding portal, 30 patients get 26,500 donations in a week

The donations are not yet income tax exempt but the process is on for getting the relevant exemptions.

One in three children with a rare disease won’t live to see their fifth birthday

There are about 7,000 different rare diseases. And on Rare Disease Day, it's time to accept these diseases are more common than you think.

On Camera

Imagine if Epstein files named Rahul Gandhi or MK Stalin. What would BJP and TV media do?

The questions are not going to go away. But future generations will know who refused to ask the tough questions and who didn’t.

Tamil Nadu FM presents interim budget, attacks Centre for ‘artificially inflating’ state’s debt

DMK govt accuses Centre of withholding funds, tightening borrowing, unilateral deductions from state accounts. Says Centre's accounting & funding decisions have 'artificially inflated' debt burden.

US military commander, envoy Sergio Gor visit Indian Army Western Command, Bengaluru next

At the Western Army Command, the American delegation was briefed on the capabilities of the formation, past operations and the path ahead.

The new Great Game—Trump’s playing for time, China for leverage & India for wiggle room

This is the game every nation is now learning to play. Some are finding new allies or seeing value among nations where they’d seen marginal interest. The starkest example is India & Europe.