India has 8.4 to 19 crore rare disease patients, according to health ministry estimates. But current beneficiaries in most cases are kids or those who need relatively less expensive drugs.
The medical research body aims to encourage domestic companies to develop cost-effective treatments for rare conditions, such as spinal muscular atrophy, Gaucher disease, among others.
Surgery conducted at Fortis Escorts, Okhla. Removal of diseased portion of liver was a challenging task as organ was stuck around surrounding vital structures.
Finance ministry announces exemption from basic customs duty. Cost of some medicines used to treat rare diseases ranges from Rs 10 lakh to Rs 1 crore, says govt.
Their main demands were amendment of rules to ensure insurance firms can't deny reimbursement of medical expenses & funding of indigenous research to develop a treatment protocol for DMD.
Experts say the one-time payment for poor patients of rare diseases is a u-turn from the govt’s earlier promise of continued aid irrespective of income.
The treatment of rare diseases requires medicines categorised as ‘orphan’ drugs, which are mostly imported and cost a patient anything between Rs 50 lakh and Rs 4 crore per year.
By turning a blind eye to the snakes in his own backyard, Trudeau is setting the stage for a disaster of epic proportions for his country, his people, and the world at large.
In Episode 1544 of CutTheClutter, Editor-in-Chief Shekhar Gupta looks at some top economists pointing to the pitfalls of ‘currency nationalism’ with data from 1991 to 2004.
While there are patrolling points (PP) 10, 11, 12, 12A and 13 in the Depsang Plains, the patrol in the region Monday was carried out to only one point as decided by India and China.
While we talk much about our military, we don’t put our national wallet where our mouth is. Nobody is saying we should double our defence spending, but current declining trend must be reversed.
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