scorecardresearch
Thursday, July 24, 2025
TopicRare diseases

Topic: Rare diseases

36 drugs to treat cancer, rare diseases exempted from basic customs duty in Union Budget 2025

Lakhs of patients are likely to benefit from this move as some of these drugs were exorbitant to procure.

New hope for rare disease patients: Rs 900-cr govt project to get high-value drugs at lower rates in works

India has 8.4 to 19 crore rare disease patients, according to health ministry estimates. But current beneficiaries in most cases are kids or those who need relatively less expensive drugs.

ICMR calls for development of local drugs for rare diseases, offers assistance in clinical research

The medical research body aims to encourage domestic companies to develop cost-effective treatments for rare conditions, such as spinal muscular atrophy, Gaucher disease, among others.

Delhi doctors perform 8-hour auto liver transplant surgery on Kyrgyzstan woman, 2nd in India

Surgery conducted at Fortis Escorts, Okhla. Removal of diseased portion of liver was a challenging task as organ was stuck around surrounding vital structures.

Govt decision to remove tax on drugs & food to treat rare diseases could benefit 70-90 million Indians

Finance ministry announces exemption from basic customs duty. Cost of some medicines used to treat rare diseases ranges from Rs 10 lakh to Rs 1 crore, says govt.

‘Breaks me every day’: At Delhi rally, parents of kids with muscular dystrophy flag dire need of govt support

Their main demands were amendment of rules to ensure insurance firms can't deny reimbursement of medical expenses & funding of indigenous research to develop a treatment protocol for DMD.

Govt sets up ‘rare disease’ crowdfunding portal, 30 patients get 26,500 donations in a week

The donations are not yet income tax exempt but the process is on for getting the relevant exemptions.

Harsh Vardhan approves national policy for rare diseases

The policy aims to lower the high cost of treatment for rare diseases, with increased focus on indigenous research and local production of medicines.

One in three children with a rare disease won’t live to see their fifth birthday

There are about 7,000 different rare diseases. And on Rare Disease Day, it's time to accept these diseases are more common than you think.

Modi govt to make one-time Rs 15 lakh payment for poor patients with rare diseases

Experts say the one-time payment for poor patients of rare diseases is a u-turn from the govt’s earlier promise of continued aid irrespective of income.

On Camera

Defence, tech, education—Modi’s visit will boost India-UK ties

Given the immediate challenges on India’s borders, cooperation in the defence sector with partners such as the UK has achieved greater importance.

India-US set to ink mini trade deal soon, reach understanding on agricultural & dairy products

Mini deal will likely see no cut in 10% baseline tariff on Indian exports announced by Trump on 2 April, it is learnt, but additional 26% tariffs are set to be reduced.

Indian firm sets up titanium, superalloy plants to meet global need. Safran, Dassault, BAE line up

PTC Industries is investing Rs 1,000 cr in 4 manufacturing plants in UP, has already started supplying titanium parts to BAE Systems for its M-777 howitzers that India also uses.

Strategic partner one day, tactical nightmare the next: India’s learning Trumplomacy the hard way

Public, loud, upfront, filled with impropriety and high praise sometimes laced with insults. This is what we call Trumplomacy. But the larger objective is the same: American supremacy.