India has 8.4 to 19 crore rare disease patients, according to health ministry estimates. But current beneficiaries in most cases are kids or those who need relatively less expensive drugs.
The medical research body aims to encourage domestic companies to develop cost-effective treatments for rare conditions, such as spinal muscular atrophy, Gaucher disease, among others.
Surgery conducted at Fortis Escorts, Okhla. Removal of diseased portion of liver was a challenging task as organ was stuck around surrounding vital structures.
Finance ministry announces exemption from basic customs duty. Cost of some medicines used to treat rare diseases ranges from Rs 10 lakh to Rs 1 crore, says govt.
Their main demands were amendment of rules to ensure insurance firms can't deny reimbursement of medical expenses & funding of indigenous research to develop a treatment protocol for DMD.
Experts say the one-time payment for poor patients of rare diseases is a u-turn from the govt’s earlier promise of continued aid irrespective of income.
Premier David Eby, the leader of the minerals- and gas-rich province of British Columbia, spoke with executives at Tata Steel and Reliance Industries on a trade mission to India.
Overall, President Droupadi Murmu has approved Gallantry awards to 70 armed forces personnel, including six posthumous, on the eve of 77th Republic Day.
No nation other than China can negotiate one-on-one with Trump on an equal footing. That’s why the middle powers who so far formed the core of multilateral bodies now feel orphaned.
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