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Sunday, September 28, 2025
TopicRare diseases

Topic: Rare diseases

Modi govt to make one-time Rs 15 lakh payment for poor patients with rare diseases

Experts say the one-time payment for poor patients of rare diseases is a u-turn from the govt’s earlier promise of continued aid irrespective of income.

Trader’s margin on drugs for rare diseases may be cut to 30% from 4,000%

The treatment of rare diseases requires medicines categorised as ‘orphan’ drugs, which are mostly imported and cost a patient anything between Rs 50 lakh and Rs 4 crore per year.

On Camera

We can’t just blame Muslims and Englishmen for shattered Hindu unity: RSS chief Deoras

In May 1974, RSS chief Madhukar Dattatraya Deoras spoke at a lecture series in Pune about caste-based discrimination and social equality within the Hindu fold.

Market regulator SEBI clears Adani Group of impropriety alleged by Hindenburg Research

SEBI probe concluded that purported loans and fund transfers were paid back in full and did not amount to deceptive market practices or unreported related party transactions.

With MiG-21’s exit, India’s squadron strength hits 6-decade low. What are IAF’s plans for the Tejas

While the IAF remains committed to the Tejas programme and has placed orders for 180 Tejas Mk1A, the force is eagerly waiting for the Tejas Mk 2 version.

Something’s hidden in the Oval Office photo of Trump, Munir, Sharif. India must look closely

What Munir has achieved with Trump is a return to normal, ironing out the post-Abbottabad crease. The White House picture gives us insight into how Pakistan survives, occasionally thrives and thinks.